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VSI for Kids > Share your Story

Share your Story

You Are All Our Superheroes!

We'd love to hear about your adventure with VSS — your story might help another kid out there!

  • What is your experience with VSS like?
  • Who has helped you and how?
  • Do you have any tips to share?
  • Any encouraging words to share with others?
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ABOUT US

The Visual Snow Initiative (VSI) is a nonprofit organization dedicated to global awareness, education, resources, patient advocacy, treatment development, and research for VSS. To date, our team has heard from people affected by VSS in over 93 countries. Together, we can find solutions!

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  • Hello 👋, how can I help you today? Please note that the answers, content, and guidance provided by our AI Chatbot are for educational and informational purposes only and do not constitute providing medical advice or professional services. While we strive to provide accurate information through the AI chatbot, we cannot guarantee the accuracy, completeness, or up-to-date nature of the information provided. We encourage you to use responses as a starting point, and those seeking personal medical advice should consult with a licensed healthcare professional. If you think you may have a medical emergency, call 911 or go to the nearest emergency room immediately.
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